Q: Do you ever get angry or scared about your disease or dying?
A: Of course I get angry and scared. I am very human. Some people think I am always brave. I try to be, but I cry like the next person sometimes. I am needle phobic and pain phobic, so that doesn't help. But even if I get upset, or think, "I can't do this anymore," I get myself together and pray or play or talk with my mom or a close friend, and I get beyond that tough time. I might say, "Why me?" But then I say, "Why not me? Better me than a little baby, or a kid who doesn't have strength or support." I am very blessed to have God and my mom so involved in my life.
I am also lucky because I have a lot of great support from my doctors and MDA friends, and from all the people who write to me and tell me how my words have made a difference in their lives. I am so lucky that I get to see the difference. Everyone makes a difference in somebody's life. Everyone. It's just that not everyone gets the chance to realize that difference in this life. So my life is very difficult, and sometimes painful, but very full and blessed.